Monday, December 17, 2012
Posted by Erin Beckemeier at 3:34 PM
Greg took Conway to Dr. Spivey this morning. Apparently he'd already gotten his records from his pediatrician and also spoken "at length" to his cardiologist so he had a pretty good picture of his history. Just that fact alone gave me confidence and made me really appreciate the coordination of care that was taking place. After a lung function test which appeared normal, he said that he feels these episodes we are seeing are more like recurrent croup than true asthma. The positive thing about this is that as children grow, so do their airways and they can outgrow this. It is also possible that the numerous intubations have led to some scarring in his airway, leaving him more susceptible to these breathing issues. For now we are treating it pretty much the same as we have been with the addition of a liquid steroid we'll keep on hand for severe episodes in which we are contemplating an ER visit. We'll follow up in 5 months unless things get worse. At this point, giving him a daily medicine seems uneccesary since he only experiences this a handful of times per year. Thank you for praying for wisdom for all involved in his care. It appears to be the best possible scenario and we are truly pleased with how well his physicians worked together to come up with the best plan for him.